Sunday, January 3, 2010

PXE

Most of you know how passionate I am about PXE and all the work that they are doing. They are on the verge of great things, and they must keep their momentum going.

Some of the projects in their pipeline include:
  • Conducting a PXE clinical trial for retinal treatments
  • Funding the PXE International Research Consortium - 36 labs around the world
  • Building an international registry of over 4000 affected individuals
  • Expanding the PXE International Blood and Tissue Bank for research projects
  • Examining some potential treatments in mice

  • The only source of their funding is donations from individuals and a few foundations. PXE is extremely efficient and spends only 7% of their annual income on administration and fundraising.

    Please, just send a few dollars – whatever you can spare in this season of generosity.

    You can simply click here Please Donate to PXEand fill in your credit card or send a check to: 4301 Connecticut Avenue NW 404
    DC 20008-2304
    Telephone: 202.362.9599
    Fax: 202.966.8553
    Website: www.pxe.orgBlessings in this special season to you and yours,

    Kerry,
    on behalf of Sharon F. Terry, Founding Executive Director
    sterry@pxe.org

    Thank You to those that have already sent your gift!! We appreciate it very much!!

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